I would like to begin this update by thanking those persons
who have come to see Laurie and I and to those who have written words of
sympathy, hope and best wishes. I am reading your notes to Laurie. I would also
like to thank those who have brought flowers for Laurie and food down for me. I
am not cooking with the same level of effort or enthusiasm that I did when
Laurie was at home so having some ready to go meals is much appreciated. It
has now been two weeks since Laurie entered the Kemptville District Hospital
(KDH). The ward that she is on is quite small and I know of at least 10 rooms
available for palliative care. Laurie's room is quite nice and is perhaps one
of the nicest in the area. There is only one room past hers which means that
not a lot of people traffic goes by her room. Some rooms have multiple patients
which Laurie experienced in the Ottawa hospital stays. Not exactly ideal so I
am thankful that Laurie is quite comfortably situated in a quieter room.
Laurie's health over the last week has not really changed.
It was the first week there that she took a dramatic turn for the worse.
Generally, the days are quite similar now. I am getting to the KDH by 08:00 now
and have bought a monthly parking pass. This allows me to come and go whenever
I wish and is much more economical than paying parking for each visit. It is
much more convenient as well. Laurie is sleeping when I arrive and she looks
comfortable. Darwyn is always close by her. I let her sleep though breakfast
arrives between 08:00 and 08:30. When she shows sign of waking up I open the
curtains and gently help to wake her. I call the nurse to help Laurie with the
bathroom visit. It really takes two persons now to help Laurie since her
walking, balance and sitting are not very strong. I leave the room so
that the nurse can assist Laurie to prepare for the day. The bathroom is a
private one in the room and is quite nicely equipped with shower, toilet and
sink. I get the breakfast ready for her return to the room.
Laurie has breakfast and her other meals while sitting in a
nice chair. I prepare her meals for her but she often likes to take the spoon
from me and eat herself. The same goes for drinking. Breakfast can take
quite a while. Laurie often eats everything given plus some Greek yogurt that I
have brought in. The little refrigerator is now filling up with a variety of
things to supplement Laurie's hospital foods. After breakfast and the
pills, we watch television. Laurie seems to enjoy the Food Network and she
watches intently all of the shows, some of which are really quite
interesting. Hopefully, I will be a better cook after watching these
programs.
We stand up from sitting about each hour or so. I help
Laurie with this as she can not do this on her own. The lunch usually arrives
just after twelve. I selected the menu for both lunch and dinner while the
breakfast was delivered. I choose the hot lunch since Laurie has difficulty
with eating sandwiches of any kind. There are also pills and vitamins for lunch
which are crushed and I mix into whatever food seems most appropriate to do so.
I think that the majority of pills have a bitter taste so putting them in jam
or apple sauce or yogurt seems to hide some of the taste. Lunch is typically a
slow process but Laurie seems to enjoy the meals and there is a good variety of
menus. After lunch I call the nurse to help Laurie with the bathroom
routine and also to get her into bed for an afternoon rest. Typically Laurie is
in bed and falling asleep by 13:30. I stay with her until she and Darwyn are
asleep.
Perhaps the most difficult times for me at the
hospital are in seeing that the majority of the other patients are much
older than Laurie....perhaps in their late 60s and 70s. There is a different
ward for those persons who are older. The other hard time is when I see Laurie
walking. She requires assistance as her balance is not steady. She moves very
slowly but she works hard with the physiotherapists when they take her down the
corridor. I see a lot of determination in her eyes although this must be so
very difficult for her. She continues to have unbelievable courage and I know
that my efforts would not be so motivated.
Over the years, Laurie and I have spent a lot of time walking
and climbing. We have climbed the highest mountains in Vermont (Mansfield at
1,339 m), New Hampshire (Washington at 1,917 m) and in New York state
(Marcy at 1,629 m). We have walked many kilometers of trail in Ontario and
Quebec and in the New York state Adirondacks and New England Appalachians.
Laurie has climbed Ben Nevis, the highest peak in the British Isles
at 1,344 m and Slaettaratindur at 882 m which is the highest mountain in
the Faroe Islands. She climbed Newfoundland's second highest peak (Gros Morne
at 807 m) as well. No wonder we felt so tired getting back from our holidays!
So, to now see Laurie trying to walk as best as she can down the corridor is
really heartbreaking.
I leave the KDH for a few hours after Laurie is having her
afternoon nap. I do some shopping in Kemptville if required and then
return home for a while. I am doing her laundry every two days so that she has
a nice fresh supply of day clothes and pyjamas. When I arrived back in the
afternoon one day this week Laurie's (and Darwyn's) blanket from home was
missing. This is a special blanket that one of our friends passed along to us.
It has an embroidered moose on it and it very soft and warm. Being white the
staff doing the laundry just took it and tossed it in with the other items to
be laundered. I was able to retrieve the blanket and gave it a good wash at
home before returning it. The afternoon time has also given me a chance to
get the cars and the outside of the house ready for our winter. So far we have
had no snow but the temperatures are now starting to fall into the minus
Celsius level at night.
The drive between the KDH and home is usually 12 minutes
unless I hit rush hour and the trip takes a minute or two longer. I leave
the house to drive back to the hospital by 16:15 arriving well in advance of
her dinner. Laurie seems to have a good appetite for dinner as well. I tend to
cleanup whatever may be left on the plate since I do not eat dinner until I
return home. I do have a snack however while at home in the afternoon. After
dinner we watch more TV with the Food Network being the channel of choice. We
take a little walk between shows so that Laurie can look down the hallway to
see what might be happening. Usually it is pretty quiet as others are probably
watching TV too at that time. Between 20:30 and 21:00 the nurse arrives
to help with getting Laurie ready for bed. I stay with Laurie in the room
as she is falling asleep. Sometimes she is not quite ready for bed so she
watches TV from her bed for a little while. By 21:30 she is typically almost
asleep.
I have come to know and like most of the nurses attending to Laurie. There seems to be many nurses and it is infrequent that the same nurse
attends to Laurie on more than two or three twelve hour shifts per week. The
bad experience I had with the very first nurse seems to be behind us now. I
still find some inconsistency in Laurie's care that should not be there. This
can apply to some nurses not bringing the pills at the correct time or not
knowing that pills should be prepared. Sometimes the pills arrive whole instead
of being crushed. I administer all of Laurie's pills since I have the time and
the nurses always seem to be ten minutes behind in something. Most nurses have
told me that they appreciate the time I spend with Laurie which results in her
being somewhat of a low maintenance patient for the nursing staff. The doctor
drops by each day, or is supposed to, to see how things are going. They
rotate each Friday for a week's work in the palliative care ward. One day this
week I asked the doctor about the results of Laurie's blood test for her
dilantin level. He said that it had not come back but he would let me know. He
actually called me later in the day and we talked on the telephone about the
results which were OK. So, generally good nursing and doctoring for now but I
am still apprehensive about things.
Laurie's sister has come up twice to the KDH. It is very
good to have her here and I really appreciate the extra time it allows me outside
of the hospital. Logistically, it can be difficult for her to get here since
she works in retail. As well, the drive is about five and one-half hours if the
weather and the roads are in good shape. She is currently sitting with Laurie
as I am at home writing this update.
For those that regularly check the blog, my intention is to
post updates about every two weeks now and include some current pictures.
Please keep thinking of Laurie and arrange a visit with me
should you be in the area.
