Welcome!

Laurie had a serious brain lesion that was surgically removed on July 24, 2011. It was uncertain exactly what the disease was and to me, these days were really the fight for her life. After the surgery, Laurie spent two weeks in an Ottawa, Ontario hospital. This period was full of events relating directly to her and to other patients and aspects going on in the hospital during her stay. Laurie came home on Friday, August 5th, 2011. Since being at home, events have settled into a routine but not without the ups and downs of recuperating with a rare brain tumour. Her story is one of hope, struggle, patience and above all, courage. The current update is presented at the top of the page with her day-by-day story presented from the bottom upwards.
This story also has pictures of Laurie. She is a woman of many interests and dimensions. She and I love to travel and September has been our favourite time of year to do so. The trips taken over the past six or seven years have seen us in places like western and central Scotland, Iceland, the Faroe Islands, New Zealand, Australia, Cape Breton, Charlevoix, Ireland and to Newfoundland a couple of times. The first things that Laurie always packs are her plant press, silica gel bags, binoculars, loupe, botany reference books, bird books, hiking books, note books and always a good raincoat. If there is any room left she packs some clothes. You can usually recognize her at the airport because she is one with three or four layers of clothing on.

Wednesday, 7 November 2012

long way home

Laurie's brain tumour is classified as a Grade IV glioblastoma multiforme. When this diagnosis was made by the pathologist in July of 2011, it was communicated to us that it is a serious illness. Although various treatments can be applied, the full recovery from such a brain tumour is rare. Since the last update about two months ago, Laurie's health has deteriorated significantly. This was especially the situation over the last ten or so days. Over the past couple of months we have met with the radiation oncologist, the chemotherapy oncologist, the surgeon and her GP on a number of occassions. Laurie had two MRIs that showed tumour progression to the right side of the brain and along the ventricles. The prognosis for Laurie was not very good.
 
On Friday, November 2nd, 2012, I took Laurie into the Kemptville District Hospital (KDH) for a stay in the out-patients area. The plan was that I would get some rest and that Laurie's condition could be better assessed over a long period of time. On Wednesday, November 7th Laurie was to return home. However, this will not be the situation. Laurie's is now in the palliative care ward of the KDH under the recommendation of the chemotherapy oncologist and her GP. In speaking with the GP this morning, I was told that Laurie would pass away in her room at the hospital. There is nothing that anyone can do for Laurie at this point. In the Fall 2012 issue of Brainstorm (a newsletter of the Brain Tumour Foundation of Canada), there is a parallel story of a man with the same disease. His glioblastoma was detected in January of  2011 and he died in early May of 2012. He was only 24 years of age. Although no one involved in Laurie's health care has told me how long she may live I suspect that it will not be very much longer. She is barely able to walk and can not walk unless escorted. She is eating a little although this is a slow process and one that requires direct assistance. She has no cognitive abilities that I can report on but she does smile when I arrive in the mornings to see her. Her focus seems to be on a television channel although she is likely not able to comprehend the program.
 
Laurie has a single room which is comfortably equipped. Her large window faces south which is the direction of Oxford Station. The surrounding environment seems quite peaceful for the most part. She is quite tired and sleeps after lunch until late afternoon. I try and arrive about 11:00 and help with her lunch. I stay with her until she is ready for a sleep. I return in the evenings after dinner until she turns in. 
 
If you are in the area you may visit with Laurie at the KDH. She is on the second floor in room 109. Do not expect Laurie to indicate any recognition or to communicate. She will be tired but hopefully will be able to sense your being there with her. This update is on the short side since I really can not say anything more than I have.  Thanks to those of you who have continued to read the blog and for your thoughts of Laurie and I. I know that she would appreciate this very much.
 
Mark 
 

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